4 year old who featured in Channel 4 documentary on palliative care has passed away

I have today written for ehospice about 4 year old Abdurahmane who featured on Channel 4’s ‘Unreported World’ documentary who has sadly passed away just a few days after the powerful documentary was shown. Like so many that heard his story I am really sad to have heard this news. I am writing now to encourage you to watch this Channel 4 documentary that looks at access to basic pain medications in Senegal.

Abdurahmane has passed away but I hope his death, as his life was, might be part of what brings about the change so desperately needed in many countries around the world – by no means just Senegal! 

unreported world

This is what I wrote for ehospice:

The life of 4 year old Abdurahmane touched the lives of millions. Abdurahmane had retinal cancer and featured on Channel 4’s ‘Unreported World’ documentary looking at shortages of pain medications across Africa and specifically in Abdurahmane’s home of Senegal.

At the time of filming the documentary he had been in the hospital for three months, receiving chemotherapy, which had shrunk the tumour in his eye.

Abdurahmane had also been one of the few people in Senegal to receive morphine to control the pain he was in. The documentary explained that when stocks are low, the hospital pharmacy gives children priority to the morphine. Sadly though, even in this specialist unit the stocks of morphine sometimes run out.

Human Rights Watch last year highlighted that the authorities in Senegal allow only a very small amount of morphine into the country each year. It is thought they import as little as just one kg, enough to treat about 200 cancer patients when there is demand for tens of thousands of patients in severe pain.

It was through the story of Abdurahmane though that this problem was highlighted to the millions of viewers around the world who would have by now watched the documentary.

It was with great sadness then that a few days after the programme first being shown we learnt of Abdurahmane death.

The award winning journalist Krishnan Guru-Murthy who met Abdurahmane and built up a relationship with him broke the sad news on twitter saying:

“Very sorry to say that 4 year old abdourahmane who we filmed about morphine shortages has died”

The impact that Abdurahmane had on the viewers was immediately obvious in the string of responses from memebers of the public.

It is hoped that Abdurahmane life and death will continue to inspire and will drive the change in Senegal that is so desperately needed.

More information:

You can watch the documentary for a limited period on the Channel 4 On Demand facility by clicking here.

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Channel 4 looks at Africa’s scandalous shortage of pain medications

“without the political will to change, vulnerable people remain deprived of humane treatment and an end to life free of pain.” 

This is the conclusion of the Channel 4 documentary, ‘Africa’s Drug Scandal’ that I helped to coordinate through my work – the African Palliative Care Association. The documentary is due to be broadcast on Channel 4 in the UK at 7:35pm on Friday 30th May 2014.

I am posting about it here because it strikes me as a rare opportunity to get a large number of people thinking about an issue that is incredibly important to me.

The documentary focuses in on the issue of access to pain medications – predominantly oral morphine. Having access to such medication is something that most people in the UK take for granted. If you were diagnosed with a life-threatening illness tomorrow you would assume that you would be given the appropriate pain control that would firstly enable you to live your life to the full but secondly, would enable you to die a peaceful death.

For the majority of people in the world this is simply not the case. Indeed, as ehospice reported last November, due to a lack of access to inexpensive and effective essential opioids more than 4 billion people, over half the world population, live in countries where regulatory barriers leave cancer patients suffering excruciating pain.

In countries like Senegal where the documentary is set the situation is dire. Last October Human Rights Watch found that the government only imports about one kilogram of morphine each year – enough to treat about 200 cancer patients when there is an estimated need in the tens of thousands of patients!

And so, this is one of the corner stones of my organisations work – to lobby, offer training, educate and empower people to ensure that everyone has access to the pain medications they need.

unreported world

It might seem like an abstract issue, but as Krishnan Guru-Murthy, the renowned Channel 4 reporter finds out, once you see a patient suffering in unbearable but perfectly treatable pain you instantly understand the importance of the issue.

Guru-Murthy concludes the situation amounts to “needless cruelty”.

I find it impossible to see how anyone, when faced with this reality could conclude anything different.

The programme can be watched live online here, on 4OD for 30 days after broadcast here, and you can read a preview in the Radio Times here.

Let me know what you think of it in the comments below.

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Watch the first of the Al Jazeera series on access to medical morphine

aljazeera011613I occasionally link here bits of my work with the African Palliative Care Association that I think could be interesting to a wider audience.

Here is a short Al Jazeera report on access to morphine in Uganda that I helped coordinate. It serves as a nice introduction to the subject that leaves millions suffering from perfectly preventable pain.

The film was shown on repeat last week. On Thursday they had our Executive Director, Dr Emmanuel Luyirika, on to speak about the subject. You can watch the interview here:

In Uganda, a regional leader in terms of medical morphine availability, only one in ten people who need medical morphine have access to it!

For more information:

Help out:

At the moment millions of Africans suffer terrible pain because they don’t have access to really basic pain medication that many people in Europe take for granted. If you feel like I do that no-one should be left to die in pain then please consider:

 

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10 incredible pictures from the white-water kayaking Nile River Festival

1 by Alexey Dudkov
I wrote a short report for The Great Outdoors (TGO) magazine of the Nile River Festival 2014

Click here to read the article and to see the 10 incredible photos.

 

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Patient photos from Hospice Africa Uganda

Last week I visited Hospice Africa Uganda. I was lucky enough to spend a couple of hours with some of the patients. I had a really wonderful time.

Sometimes people think of hospices as places where people go to die. This perception is so different to the reality I experienced. This is, at least in part, why I wanted to share these photos. During my visit I was blown away by the vibrancy of life the patients radiated.

Click on the images below to see them enlarged.

*Please do not reuse these photos without my consent. Thanks. 

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Mike Assenti on the need to change the political climate around flooding

With half of the Somerset Levels currently underwater and thousands of lives and livelihoods put on hold, a huge argument has erupted around the Enviornment Agency and what it should have done to prevent the situation.  Mike Assenti writes for Hynd’s blog on climate change, flooding and his growing frustration with the political establishment.

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Suddenly, it seems everybody is an expert in flood management.

Why weren’t the rivers dredged? Should the rivers even be dredged? Did the Environment Agency give the government bad advice, as Eric Pickles has claimed? Is the Environment Agency’s policy the direct result of the Treasury’s rules, as the EA’s Chairman Chris Smith has countered?

Frankly I don’t know.

Unlike Mr Pickles, I’m more than happy to admit that I’m really not well versed on the evidence on the effects of dredging, and I’m most certainly not an expert in flood defences. But, if you’re interested, George Monbiot wrote a fascinating article on the subject last month for the Guardian.

The media is understandably mostly concerned with the striking images of the effects of this weather, and with the terrible personal stories of those affected. (Now that it is the Home Counties which are facing some serious flooding, the tension seems to have ratcheted even higher…but this is a subject for another, more cynical post.)

Much of the focus has been given to the short term effects of the flooding, and even to the medium term causes and preventative measures. Of course, the fact that there is now a political row attached to this aspect will undoubtedly drive further superficial analysis.

What has had far less attention though are the long term causes of this extreme weather. Whether or not this current batch of weather is definitively linked to climate change is almost impossible to say for certain, but the MET Office Chief Scientist, Dame Julie Slingo has stated that, “All the evidence suggests there is a link to climate change“.

Regardless of the provenance of this current batch of storms, climate scientists broadly agree that one effect of climate change is likely to be the increasing frequency and severity of extreme weather.

We have spent years hearing the horror stories of climate change, and even seeing what are supposedly some of the early effects. Agreements have been made as to how best to tackle it, carbon targets set, carbon targets postponed, reduced, and missed. Subsidies have been introduced to encourage the development and installation of renewable power sources, said subsidies then reduced or removed. The leader of a government which came to power claiming to be ‘the greenest ever’, has since been quoted demanding the removal of ‘all the green crap’ from utilities bills.

As an Engineer, I am reluctant to point out a problem without also suggesting a solution. However, in this case my frustration with the attitudes of those in power (both politically and commercially), as well as with a large part of the general public has spilled over from indignant rage into resigned apathy. I don’t know how more clearly the scale of the problem and nature of the solutions to climate change need to be stated before we start to take it seriously. Dozens of solutions to this problem have been mooted, but all of them require a fundamental shift in thinking by those in charge.

Instead of paying lip service to those campaigning for solutions to climate change, we need to start seeing some real action. We need to see real investment in renewables and local storage, rather than incentivising fracking. Countering the assertion of the energy companies that green subsidies are to blame for increasing bills not with (the totally accurate) explanation of how little these subsidies are, but with an explanation of why it is fair that they are paid. Taking more control of public transport, to make it economical to travel by train or bus rather than driving. Appointing an Environment Secretary who isn’t a climate change skeptic would be a good start, not to mention ditching a chancellor who wants the UK to be behind Europe on tackling climate change.

For years now the images of the effects of climate change have been of floods in Bangladesh, typhoons in the Far East and rising sea levels in the Maldives. Now that affluent villages in the South West of England are under water, will we start to see a shift in attitude?

Sadly, I suspect that we will continue treating the symptoms rather than the root cause.

I recently heard an excellent description of climate change skeptics who cite the cold weather in the US as evidence against climate change as standing on the Titanic, claiming, “The ship can’t be sinking – my end is 500 feet in the air”.

Here in the UK, we are ignoring the oncoming icebergs while we argue about drying the bed linen.

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On genocide, palliative care and enduring hope

Rwanda1
One of the many reasons I love my current job is because of the amazing people I get to interact with on a daily basis.

When working in palliative care you meet people who are being pushed both physically and emotionally and it never ceases to amaze me how people respond to these challenges with humour, courage and most of all, hope. This is true for both patients and medical practitioners.

Today I feel really honoured to have received an article from Dr Christian Ntizimira from Rwanda that marks International Holocaust Memorial Day by looking at the challenges to providing palliative care in a post genocide society.

If you accept my observation that death can push people in conventional circumstances to their limits both emotionally and physically then it is a small step to observe that genocide has the potential to rip both people and society to shreds.

But what sets Dr Christian’s article apart is not the description of how people’s lives were ripped apart and how millions were killed of displaced but how, in the aftermath of such suffering, Dr Christian has chosen to draw out a narrative of hope and courage.

If I was to draw one thing from this last year of working for the African Palliative Care Association – and more generally with palliative care practitioners – it is this optimism in the face of adversity.

Whatever happens, however bad, palliative care offers a simple framework to be able to help. I have seen this in the care patients receive right up to their last breath and Dr Christian powerfully illustrates this point in his article on genocide and palliative care.

You can read Dr Christian’s article visiting ehospice by clicking here >>>

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Adventure holidays and trips in Africa for 2014

This article was written as part of The Guardian’s ‘Adventure Sports Series’.

Kayak the Nile
From kayaking the Nile and mountain biking in the shadow of Kilimanjaro to exploring Africa’s amazing national parks.

Jinja, Uganda, is a town on the banks of the Nile that is gaining a reputation as the extreme sports capital of east Africa. This is, in part, thanks to the range of whitewater rapids on the nearby stretch of the river Nile.

You can read the whole article on the Guardian Travel site by clicking here >>> 

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Working with Don Foster MP

For about a year and a half I worked for Don Foster MP who today announced that he would not be standing for re-election in 2015. Here a few reflections on what it was like working for him. 

Don

Don was first elected to the Bath seat in 1992 when he beat the then-chairman of the Conservative party Chris Patten. He was then re-elected with sizeable majorities on four separate occasions serving Bath over 5 parliamentary terms.

I am happy to debate the legacy of his 18 years in opposition and the last three years in government. For now though I wanted to write a little on what it was like working for Don as I think this hits at the heart of why so many consider him to be a fine MP.

The first thing that jumps to mind is his formidable work ethic. 80 hour working weeks became a norm for him spending his weekends back from Westminster attending both public and local Liberal Democrat events in the constituency.

I remember once slumping into the local leisure centre at 7:30 in the morning to go for a swim before work. On the way in I bumped into Don bouncing out of the gym with a huge smile on his face cracking some joke about having a running start to the day.

And this was perhaps the second thing that springs to mind about working with Don – his sense of humour was superb…even in the face of cock ups from his staff.

In the lead up to Christmas 2011, the local press failed to spot a spoof press release about Don’s renowned ukulele playing. The press release intended to invite them to Christmas drinks but in jest invited the press to Don’s launch party for his bid to become Christmas number one. Failing to spot that this story was a spoof it spread rapidly all over Europe with articles appearing in major national and international media – ‘Liberal Democrat MP in Christmas number one bid’. This story was then replaced with the ‘Liberal Democrat MP forced to deny he’s releasing Christmas single’ stories.

A bit of a cock-up.

It would have been understandable for an MP to be pissed off in such a situation. Instead Don took it all in his stride. That year, all his staff received big Christmas presents wrapped up – we all got our very own ukuleles.

To clarify, I am not saying he couldn’t be a grumpy git, he of course could be. But more that considering how hard he worked and the nature of his work he was impressively good natured about it all.

This good humour gave him a foundation on which to interact with people on a very personal level. Watching him interact with a room full of strangers – all of whom would normally know him – was impressive. He just had a way with people that didn’t stem from that stereotype that politicians have of ‘smoothing’ people, but from a genuine interest in people.

I remember sitting with Don just before he was due to go live on BBC Radio 4’s World at One. I was sat holding, and inexplicable reading to myself, a sheet of paper about key lines for the interview. Just before going on air he turned to me and started asking, not about the upcoming interview on national radio, but about a constituent whose case we working on at that time.

Casework for Don, it felt to me, wasn’t just an obligation or even an election strategy like it is for some MPs, but a reflection of his commitment to his constituents and actually caring about what happened to them.

This trait – of giving a shit about people – reflected in the way he showed interest in his staff. I left working for Don to work as a human-rights monitor in the West Bank. When I returned I had been back in London less than a week when he invited me in to have a chat about what my plans were for my next employment. He was eager to help and to ensure that working for him was a building block for me to go onto whatever I wanted to do next.

Don’s politics differ to my own but after working for him for 18 months I can say with certainty that he is a nice guy, an exceptional MP and that the constituents of Bath are lucky to have had him at their service for the last 21 years.

Today Don has been quick to remind everyone that he still has another year and half left to go until he steps down in 2015 and I don’t for a second think he is going to take his foot off the peddle in that time.

I wonder though when that time comes whether he will remember how to put his feet up or whether he will find something new to throw himself into?

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Brian Oosthuysen, on the birth of the Rainbow Nation and the death of Mandela

This is a guest post from Brian Oosthuysen on the death of Nelson Mandela. Brian is a Labour Party Gloucestershire County Councillor in Stroud and he is also a consistent campaigner for freedom, fairness and human rights both locally and internationally. Brian tweets @BrianatRodboro

Mandela 2
Apartheid was an evil, vicious system which saw the death of many thousands and the incarceration of even more. It dominated all aspects of life and was one of the reasons I left SA as a young man.

Nelson Mandela was one of those sent to prison and he suffered in many different and horrible  ways during his 27 years behind bars.

In the 70s and 80s I often addressed meetings as a member of the Anti-Apartheid Movement in England and I always ended my talk with a look into the future, which I saw as unbearably bleak.  “It will”, I would say, “end in bloodshed and the deaths of thousands of black and white people”.

And then Nelson Mandela (Madiba) was released and almost immediately transformed the political and social landscape in South Africa, and the Rainbow Nation was born.

His act of forgiveness to his former warders, his call for reconciliation and his setting up of the Truth and Reconciliation Committee showed the people of South Africa and the world that he was a man of towering stature and amazing integrity.  The constitution which his new government brought in is recognised across the world as one of the most progressive, and his stamp is clearly on it.

South Africa has many problems but the South Africa we now have is a country more at peace with itself than it has been since before 1945 when the Nationalist government came to power and Madiba is the reason for this.

Madiba once said, “No one is born hating another because of the colour of his skin or his background or his religion. People must learn to hate and if they can learn to hate, they can be taught to love, for love comes more naturally to the human heart than its opposite.”

He lived out that maxim and his death leaves the world a darker, colder place.

Hamba Kahle, Madiba.

 

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Mandela will never, ever be your minstrel

This is a cross-post from Musa Okwonga

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Dear revisionists, Mandela will never, ever be your minstrel. Over the next few days you will try so, so hard to make him something he was not, and you will fail. You will try to smooth him, to sandblast him, to take away his Malcolm X. You will try to hide his anger from view. Right now, you are anxiously pacing the corridors of your condos and country estates, looking for the right words, the right tributes, the right-wing tributes. You will say that Mandela was not about race. You will say that Mandela was not about politics. You will say that Mandela was about nothing but one love, you will try to reduce him to a lilting reggae tune. “Let’s get together, and feel alright.” Yes, you will do that.

You will make out that apartheid was just some sort of evil mystical space disease that suddenly fell from the heavens and settled on all of us, had us all, black or white, in its thrall, until Mandela appeared from the ether to redeem us. You will try to make Mandela a Magic Negro and you will fail. You will say that Mandela stood above all for forgiveness whilst scuttling swiftly over the details of the perversity that he had the grace to forgive.

You will try to make out that apartheid was some horrid spontaneous historical aberration, and not the logical culmination of centuries of imperial arrogance. Yes, you will try that too. You will imply or audaciously state that its evils ended the day Mandela stepped out of jail. You will fold your hands and say the blacks have no-one to blame now but themselves.

Well, try hard as you like, and you’ll fail. Because Mandela was about politics and he was about race and he was about freedom and he was even about force, and he did what he felt he had to do and given the current economic inequality in South Africa he might even have died thinking he didn’t do nearly enough of it. And perhaps the greatest tragedy of Mandela’s life isn’t that he spent almost thirty years jailed by well-heeled racists who tried to shatter millions of spirits through breaking his soul, but that there weren’t or aren’t nearly enough people like him.

Because that’s South Africa now, a country long ago plunged headfirst so deep into the sewage of racial hatred that, for all Mandela’s efforts, it is still retching by the side of the swamp. Just imagine if Cape Town were London.  Imagine seeing two million white people living in shacks and mud huts along the M25 as you make your way into the city, where most of the biggest houses and biggest jobs are occupied by a small, affluent to wealthy group of black people.  There are no words for the resentment that would still simmer there.

Nelson Mandela was not a god, floating elegantly above us and saving us. He was utterly, thoroughly human, and he did all he did in spite of people like you. There is no need to name you because you know who you are, we know who you are, and you know we know that too. You didn’t break him in life, and you won’t shape him in death. You will try, wherever you are, and you will fail.

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Photographs: Fire at Kampala’s Owino market

For the 4th time in 4 years, Kampala’s Owino market has once again gone up in flames. the fire broke out this morning at approximatly 4:00am.

The rabbit warren of a market makes up a large section of downtown Kampala and is the largest open air market in Kampala. On the scene in the early hours this morning, the New Vision newspaper took these photos.

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More photos from the fire can be seen on the New Vision facebook page.

Dramatic photos from the 2011 fire at Owino can be seen on Tom White’s photography site.

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Jayyous – one year on

Kate Cargin, who served as a human rights monitor with EAPPI just after me, writes about going back to Jayyous a year after we served there. 

Abu Azzam, welcomed us back to Jayyous like members of his own family and his wife Sehan laid on a lavish meal. I had met Juliane, my team-mate from EAPPI last year, in Jerusalem and the two of us were invited by the current team to stay in our old placement house.

Supper with Abu Azzam. Photo: Per-Ake Skagersten

Photo: Per-Ake Skagersten

Now, as then, the most serious problem for people living in Jayyous is the ‘separation barrier’ or ‘separation fence’, which divides the village from 75% of its agricultural land. All other problems stem from that: increasing poverty, emigration, demonstrations and arrests.

The impact of the fence and accompanying restrictions on the village is profound and life-changing. Farmers have to pass through ‘agricultural gates’ to access their land and permits to do so are often not forthcoming. It is a precarious way to live. Not only are people cut off from their farming income, but because of demonstrations against building the fence many have also been denied permits to work in Israel. Breadwinners and young people emigrate; students are pulled out of university. Regular army incursions with exchanges of stone-throwing and tear gas result in arrests, many of them of children. The prevailing emotion is loss and grief. Jayyous used to be a prosperous place to live. Now it is estimated that up to half its inhabitants receive food aid.

When the fence in this area was completed in 2003, the case for Jayyous was taken to the Israeli high court to contest its route. In September 2009, the Israeli High Court handed down a judgement to reroute the barrier to return some land to the village. Yet the farmers were not represented subsequently when the new route was determined which would return only a third of the farmland to the village. The villagers did not accept this, pointing out that all of the land belonged to them. They organised demonstrations which resulted in many arrests and increased army presence in the village. As Abu Azzam put it ‘We are expected to welcome the return of 2,488 dunums (1 dunum = 1,000 m2) and one underground well to the village. However, more than 5,000 dunums and four underground wells remain behind the fence.’ When the new fence is complete, most of the farmers will still have to pass through agricultural gates and some will even have to take a longer route.

Fence showing re-routing in progress

Photo: Fence showing re-routing in progress

Water is a huge issue in Palestine. While I was in Jayyous, villagers were suffering from a chronic lack of water because the fence cut them off from their main water supply. We had a very small well in our garden with a back-up supply from the next door village of Azzun and were warned not to drink it. There had been an agreement to pipe water from some of Jayyous’s own wells back through the fence. This was to be implemented and financed by the International Red Cross. Like many agreements it was taking its time and nothing happened during our time there. After a shaky start when the settlers destroyed the initial pipes, a pipeline is now established from three wells behind the fence to the Jayyous reservoir. However, the villagers have not been given planning permission to lay electricity cables to run the pump. They have been told to use diesel which would increase the cost eightfold. Currently there is a stalemate.

Israel says that the separation barrier is necessary for security. They claim that it has prevented suicide bombings in Israel (the last suicide bomb in Israel was in 2006). However, we remained sceptical. We were told last year ‘everyone knows where the holes are’. All of our team had seen people going through a hole in the fence near one of the checkpoints. Sometimes soldiers went down to guard the hole and sometimes they did nothing. We were very surprised, returning a year later, to see that the same hole was still in operation and had not been blocked. We were even more surprised to be told by a local man that there are eight holes in this section of the fence.

men detained at checkpoint for attempting to go through a hole in the fence

Photo: Men detained at a checkpoint for attempting to go through a hole in the fence

Nevertheless Jewish Israelis are clearly afraid of their Palestinian neighbours and believe that the fence makes them safer. I saw several manifestations of this fear. Last year, when my daughter came to visit me, the border guards tried to stop her entering the West Bank for her own safety. ‘You will be kidnapped and robbed’ they said. On another occasion, an Israeli woman warned me against getting on an ‘Arab’ bus in Jerusalem. ‘Aren’t you afraid?’ she exclaimed in surprise when I asked why that would be a problem. The fear is undoubtedly genuine but it is cynically manipulated by politicians to justify theft of Palestinian land and in the process all Palestinians are demonised. The sad truth is that the separation barrier will not make Israel more secure and does not bring about the end to fear.

My British MP, a reasonable man, was unimpressed when I pointed out the deviation of the separation fence from the Green Line and told him how it represented the livelihood of an entire village. He described it as a small bump on the map. When people talk about a two-state solution they blithely talk of ‘land swaps’ allowing some settlements to remain and Palestinians to be given land elsewhere. This is what ‘land-swaps’ can look like on the ground. Where else can Jayyousi farmers farm if not on the land next to where they live which their families have farmed for generations?

The settlement outpost caravans, which we used to monitor, have been moved from the area designated for return to Jayyous and are now on land next to Abu Azzam’s largest farm. This land was confiscated in 1988 from the Khaled family when Abdul Latif Mohammed al Khaled went to work in Jordan and the land was classified as owned by an absentee. Planning permission has been granted for 40 new houses to be built there and as with all settlements, the houses will be for Jewish Israelis only.  According to official Israeli data, Palestinians have been given only 0.7 percent of confiscated land in the West Bank; around 38 percent has been allocated to illegal Israeli settlements.  Abu Azzam told us that someone from the settlement council comes down to look at his land every day. On one occasion, he told Abu Azzam’s workers: ‘Tell Sharif (Abu Azzam’s given name) this is our land and the shed is our shed.’

Abu Azzam is a naturally cheerful man but he was more worried than I had seen him before. The Israeli army had given him a map showing the re-routed fence. There were also strange yellow lines marked on it going across his land. He said, ‘I do not know what the lines on the map mean. Are they going to take my land? Have they already confiscated my land and I do not know about it?’ This is not without precedent. Sometimes land is declared forfeit but nothing happens on the ground until some years later.

Remembering also that two sizeable plots of Abu Azzam’s land are still behind the rerouted fence, I asked him if he was afraid that village access to land behind the fence would be more difficult now that some of the land had been handed back.

His answer was to tell me a story about a melon farm which had belonged to his extended family. It was situated between the nearby town of Qalqilya, on the Green Line, and the railway, in what is now Israel. The area was designated as a buffer zone when the 1949 armistice line was drawn up, to be neither Palestinian nor Israeli. At first they were assured that they would be allowed to continue farming; then the Israelis simply sealed it off.

I looked at Abu Azzam and wondered how he could bear it. It has been his life’s work to defend his village’s land. He just shrugged and replied quietly, ‘For the moment, they say they will allow us to go there’.

Kate no longer work as an Ecumenical Accompanier and the views contained in this blog entirely her own.

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Learning to kayak the Nile

Waves crashes over the front of the kayak. All around, white water sprays up into the air. The relative calm of the flat-water section that follows this 100 meter long rapid seems like a long way off. Every wave that hits the side of the kayak holds the potential to knock this novice kayaker out of the boat and into the white-water. A few minutes later, the perilous waves that were surrounding the kayak are replaced. Now, all around are the ecstatic grins of the other first time white-water kayakers who have just completed the grade three rapid, aptly named, ‘Jaws’. This is just day one of the introduction to white-water kayaking course on the river Nile in Uganda run by Kayak the Nile.

Located a few kilometres to the north of Jinja, arguably the adventure tourism capital of East Africa, the Bujagali Lake offers a more tranquil start to the beginners learning experience. This large section of flat-water provides a picturesque area for first-time paddlers to practice their kayaking skills. The course begins with an introduction to basic kayaking techniques as well as safety and rescue techniques.

The credentials for the instructors passing on their knowledge couldn’t be higher. Out on the water on this morning offering instruction was Emily Wall, two times British Champion.  Perhaps more importantly than her experiences of competing at the highest levels of freestyle kayaking though, is Emily’s patience and obvious enthusiasm for teaching beginners.

Photo by Sim Davis

Out on the water, metaphors are used liberally to explain the movement and science behind kayaking. Whether it is through skiing or surfing Emily finds an analogy that relates to each of the would-be kayakers. Joanna Reid, a British nurse volunteering in Uganda, said after the session that, “Emily was world class and has a gift for teaching. She always made us feel safe. It was Emily and the team that made the day really enjoyable…”

But it’s not just the instructors who make learning to kayak at the source of the Nile special.

To start with, the water is dam released, making the rapids accessible, fun and relatively predictable 365 days a year. Every day you can expect an impressive 1600 cumecs meaning that you know you will have big volume rapids to learn on.

Secondly, the average monthly temperature in Uganda varies by less than two degrees meaning that most days you can expect the temperature to rise to the high twenties, but significantly, little more!

In short, it’s always shorts and t-shirt weather and not wet suits.

Lastly, the range of rapids on the river offers everything from grade 1 to grade 6 with an almost infinite number of lines into the rapids. With the right instructor there really is something for everyone, regardless of confidence and ability levels.

Explaining why she chose the Nile as her home for teaching kayaking, Emily said, “I have kayaked across five continents, yet I’ve chosen to call the Nile home because of the awesome training ground it provides for kayakers of all levels. The white water we have here on the Nile is unique; not only are the rapids warm and deep (with no rocks or crocs), the sun shines and the water flows all year around!”

Photo by Emily Wall

Photo by Emily Wall

In the afternoon then, the beginners head out to explore what this ‘training ground’ downstream of Bujagali Lake has to offer. Of course, fresh faced kayakers are not thrown straight into a grade three rapids. Most of the afternoon is spent practising breaking in and out of fast flowing water (and invariably putting rescue and swimming skills to practice).

But, as the afternoon draws on so the sense of excitement in the groups grows. The group of first-time white water kayakers paddle to a few hundred meters short of the ‘Jaws’ rapids. The river’s immediate horizon has spouts of white water kicking above it and there is the unmistakable sound of water crashing against rocks. Emily, with an ever calming voice gives the internally good advice, “whatever happens, stay calm”. Before adding, “Just keep an active paddle in the water and you’ll be fine”. And that was that.

With a healthy dose of luck and everyone vehemently following Emily’s suggested line through the rapids every learner kayaker comes out of the rapids the other end. Most, if not all, of them are still in their kayaks. But everyone, without exception, has the unmistakable grin on of someone who might have just stumbled across their new passion, white-water kayaking.

Photo by Emily Wall

Photo by Emily Wall

More information:

Visit: www.kayakthenile.com/
Follow: www.twitter.com/kayakthenile
Email: Info@kayakthenile.com

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Filed under Outdoors, Politics, Sport, Travel, Uganda

Eugene Grant: “We need to talk about men’s health.”

This is a guest post by Eugene Grant. Eugene is a great friend of mine, a freelance writer and social commentator. 

173796_507019340_815239236_nWe need to talk about men’s health. Not the magazine filled with adverts of pricey protein bars and photo-shopped photographs of male models. I mean we need to talk about the health of men.

It’s not an easy subject. For many males – admittedly, this writer included – our psyches are modelled and moulded by traditional discourses of masculinity, hardiness and gendered provider/protector roles. Forget what you’ve heard about man-flu: we don’t get ill, hurt or tired. Well, much. And when we do, many of us abide by an Omerta-like code of silence that could inspire the envy of even the most conspiratorial Mafia family.

But it’s not true, and it’s not helpful.

Almost 20% of men are likely to be treated for mental health issues. Over the past three decades, three to four times more men have taken their own lives than women. There has been no point during this thirty-year period when the rate of suicide among women was higher than that of men.

One of such man was a close friend of mine. One of the hardest, toughest, most creative and humorous people I’ve known took his own life after years of trouble and turmoil most of us cannot – thankfully – even imagine became just too much. That was a few years ago. I wish his family knew how much I miss him, sometimes.

A year or so later, in 2011, over 10,500 men died from a different health condition: prostate cancer. Prostate cancer is the second most common cause of cancer death among men in the UK. That year, a further 2,000 men were diagnosed with testicular cancer, according to leading charity, Cancer Research UK.

Us men do get ill. Seriously ill. We do breakdown. We die – often before our time.

It is with all this in mind that this year, for the first time, I signed up to participate in Movember – growing a moustache, on it’s own (no beards allowed), for the whole of November – to raise funds for vital support and research programmes that help men and their families who live with these conditions, day-in-day out.

Movember is great fun – and possibly the best example of global, co-ordinated and (effectively) branded volunteer fundraising there is. Men everywhere are either taking part or know someone who is. Facebook is awash with clean-shaven ‘selfies’; gyms, pubs and canteens buzz with discussion about whether to grow a handlebar, or a walrus; whether to emulate Tom Selleck or copy Salvador Dali.

My girlfriend is utterly horrified and a staunch opponent of me growing a ‘tache’. I can’t say I blame her. I am under no pretences that, by the end of the month, I will look truly terrible: more like a prepubescent Ethan Hawke than a modern day Teddy Roosevelt.

But it is precisely the sacrifice of dignity – something else many men are bad at – that embodies much of the spirit of Movember.

After all, we’re not invincible; we do get ill; we do breakdown.

And that’s okay.

So let’s help each other, and our families, through it the best we can.

We need to talk about men’s health. We need to talk about your mo’.

If you’d like to donate, then please give what you can, if you can. To find out more about Movember or the programmes it supports, click here.

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The end of Liberal Conspiracy

This morning Sunny Hundal, the Editor of the left-wing blog Liberal Conspiracy, announced that after 8 years of blogging he was no longer going to be up-dating the site.

Over the last few years, Liberal Conspiracy was kind enough to publish a series of my articles. These included:

Liberal Conspiracy has given me a platform to write about issues that I am passionate about. It also provided me with a wealth of interesting articles to read and learn about.

It will be missed.

In an industry that focuses so much on negative attacks and smears, I thought it only right then to publicly thank Sunny and everyone else over at Liberal Conspiracy for everything they have achieved over the last 8 years. They have often provided a positive left-wing alternative voice in opposition to the dominant mainstream media of the day. As I said, this will be missed.

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Dyslexia – what do I know about it?

This is a copy of a letter I sent to the Daily Nation – Kenya’s leading newspaper

Dear Editor,

I was pleased to see your article “Dyslexia: What do you know about it?” (22/10/2013) – It is important to raise awareness of dyslexia. With the right support and help, a child can prosper in any profession they choose despite their dyslexia. .

Like Rachel, I am also dyslexic. But, so are an estimated 700 million people world-wide – approximately 10% of the global population.

While my dyslexia was only formally diagnosed towards the end of my masters degree, I was supported in a good education system that enabled me to prosper both academically and socially. For this I am truly grateful.

However, all around the world – including in Kenya – children do suffer greatly because of lack of diagnosis. The academic and psychological consequences of unaddressed dyslexia can be devastating for all concerned – including family and friends. Dyslexia is one of the main causes of school drop-out, marginalisation and social exclusion. Studies show that dyslexic people are over-represented in prisons, among adolescents who commit suicide, and among people suffering from mental illnesses, including depression.

This is a global phenomena but one that is exaggerated in low and middle income countries.

I now work in Kampala in communications writing under deadline and pressure on a daily basis. It is a profession that I love. With the right support there is no reason why others with dyslexia cannot consider going into any career that they wish.

Yours sincerely,

Steve Hynd.

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Millions in Africa do not have access to morphine and suffer unnecessary preventable pain

This article was originally published on Left Foot Forward, Britain’s No 1 left-wing blog

Palliative care

Palliation – literally, the removing of symptoms of life-limiting illnesses such as pain – has been brought sharply into focus in Africa due to the dual burden of an ageing population and an increased disease burden.

To give just one example, 70 per cent of people living with HIV worldwide live inside sub-Saharan Africa, a region which constitutes only 12 per cent of the global population.

Millions of these people in sub-Saharan Africa require palliative care to address the medical/physical, social psychological and spiritual challenges as a result of the life-limiting illnesses.

Despite the large demand, there is still little palliative care provision across much of Africa. Many countries do not have any element of palliative care: no hospices, no formal training for medical professionals, no or little integration of palliative care into national health systems and often little public awareness.

It is estimated that only 9 per cent of countries in Africa have palliative care integrated into mainstream health services.

One of the largest challenges facing pain relief efforts in Africa is the availability of, and access to, oral morphine. It is thought that Hospice Africa Uganda, a centre of excellence of palliative care in Uganda, can mix a three week supply for a patient for ‘less than a loaf of bread’.

Despite this, oral morphine is still not widely available to most Ugandans, let alone the rest of Africa.

Bernadette Basemera, a palliative care nurse based in Kampala, explains part of the problem:

“Morphine wrongly incites fear: Doctors wrongly fear patients becoming addicted, the police wrongly fear drug related crime, and members of the government fear falling short of international drug control frameworks.”

As a result of this fear, millions do not have access to morphine and suffer unnecessary preventable pain.

In recent years however, there have been signs that this might be a thing of the past. In the last two years alone four countries – Rwanda, Swaziland, Tanzania and Mozambique – have all adopted stand alone palliative care policies.

Although policy development does not immediately translate into oral morphine availability, a number of countries such as Kenya, Nigeria, Zambia, Namibia Ethiopia and a few others have improved access to oral morphine. Meanwhile Hospice Africa Uganda, in a partnership with the Ministry of Health of Uganda, continues to produce and distribute oral morphine whilst at the same time offering training courses to practitioners from all over Africa.

At the heart of these developments are passionate workers like Bernadette. Once again working late, Bernadette describes why she wants to work in palliative care, saying:

“Palliative care is the sort of care that you would hope you and everyone you care about receives. No one wants to think of a loved one suffering unnecessarily.”

Bernadette offers a simple motivation for her work in palliative care. This simple motivation, however, could benefit millions of Africans. Palliative care needs to be rolled out, and people like Bernadette might just be the way to make it happen.

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Filed under Health, Uganda

On Israeli settlers: “They come down from the hills and get us with dogs and guns”

I have just stumbled across this article that the wonderful Kate Hardie-Buckley wrote after visiting me and my former colleague Emmet Sheerin in Yanoun in the Occupied Palestinian Territories.

I don’t think I shared the article on Hynd’s Blog at the time.

The title, “They come down from the hills and get us with dogs and guns“, might read to some as being as slightly over the top. The fact that I can promise it isn’t says a lot about life in Yanoun.

Anyway, have a read of the article and let me know what you think.

PS – you can also watch Emmet’s video about life in Yanoun.

 

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Filed under Human rights, Media, Middle East, War